in this video I’ll be answering your
questions on ms symptoms don’t turn away because it starts right now howdy thanks for learning about MS with
me Aaron Boster I started this YouTube
channel to help my own MS clinic patients learn between visits and it’s
my hope that through these videos I can help you learn – it’s no secret that I
love doing ask me anything live Q&A s where I get
on line with you and answer your questions on the fly of course I can’t
answer every question live and so I really enjoy making videos just like
this one where I answered archived questions
today’s topic MS symptoms so let’s jump into the questions mama G asks could you
discuss the best ways of dealing with balance and dizziness
mama g balance and dizziness are super frustrating symptoms for people with MS
to experience in part because they’re invisible to the outside observer you’re
spinning inside or you feel like you’re on a ship except to everyone else things
seem normal and it can be super frustrating also share that balance and
dizziness can be really challenging to treat and so I’m going to give you 3 Pro
tips to think about the first one is you might want to seek out a neuro otologist
a neural otologist is a neurologist than a specialized fellowship training in
dizzy and they normally are some of the very best diagnosticians and best
treaters of dizzy that I’ve ever met so the first tip is to seek out a neuro
otologist the second suggestion is to seek out a neuro vestibular physical
therapist that’s right there are physical therapists that specialize in
vestibular function so imbalance and dizziness they are particularly useful
because they can help retrain your brain so that you’re less dizzy and you a
better balance so the second tip is to seek out a vestibular physical therapist
awesome the third tip is to work with your provider to look through your
medication lists and medicines that might be contributing to dizziness in in
reviewing your medication list you and your
provider might find hey this medicine as a side effect that can cause dizziness
or these two medications combined might contribute to dizziness and then you can
work with your provider to peel those medicines off awesome question and best
of luck to you mom and GLA bus asks what are the best
stimulants for mental and physical fatigue that is a great question and a
commonly asked question so thank you for bringing it up I actually have an entire
playlist I’ll link a card up above with a bunch of videos dedicated to tricks
and tips to combat MS fatigue I would never want to use a medicine exclusively
to treat fatigue I really think that medication needs to be one of a
multi-pronged approach to improve energy levels in the setting of MS so we
wouldn’t want to reach for a pill when we haven’t yet optimized sleep optimized
energy conservation exercise as part of our lifestyle removed fatigue inducing
medicines etc etc but the reality is that sometimes prescription medicines
are in fact necessary to combat pathological Deak and MS now I always
like to start off with a supplement like levo carnitine that’s an
over-the-counter amino acid and there are some studies that actually suggest
that levo carnitine can improve energy levels in ms when that doesn’t work we
typically spend time either with central acting stimulants medications like
modafinil or our modafinil which are prescription medicines or medications
that are actual stimulants like adderall now all of these medicines need to be
very carefully supervised and coordinated with your doctor it’s
nothing that you’d want to grab from a friend shelf and take and they need to
be monitored and you really need to dial them in with your provider but those are
my go-to medicines when we need to use medicines to combat fatigue longtime
viewer la W asks when you talk about failing the litmus test of life is that
being so tired that you’re late all the time or forgetting things or not
thinking clearly la w Thanks for writing in and my answer is maybe when I talk
about failing the litmus test of life I’m making a point that what you share
during a very quick clinical interaction in
or what we see on a brief screening neuro exam doesn’t encompass all of you
and just because a quick discussion where you answer some directed questions
and a quick examination that shows no change it doesn’t mean that everything
is okay we as humans leave live complex lives
and paying attention to what you do to get through your daily life I think is a
really really important indicator that we shouldn’t ignore when I say failing
the litmus test of life what I mean is you’re having difficulty in getting
through activities of daily living vocational activities and recreational
activities that you didn’t use – an example would be someone that used to
attend all of their daughter’s soccer matches and now they don’t go to the
matches because it’s too hard to walk across the grassy field to get to the
match and maybe they’ll watch only the tournament matches minimizing how often
they have to trek across the field to me that’s an example of failing the litmus
test of life now that example might not come up in a quick conversation in
clinic and that example might not come up or be noticed on a quick screening
neuro exam but it’s relevant so when you talk about being exhausted and when you
talk about being forgetful and having qog fog those might be examples of
failing the litmus test of life and at minimum I would want you to bring
them up to your provider because there may be a situation where know you’re not
having an attack and no you’re not having new spots and yet hey things are
changing on the litmus test of life I hope that helps understand sort of my
thought process and I hope that you find it useful and thanks for asking the
question Lindsey asks is it normal to have
symptoms such as COG fog and difficulty with speech to come and go some days I
feel great while most others I feel like a toddler learning new words and trying
to speak Lindsey you’re not alone and no that’s not unusual when you have
structural neurological damage from MS it’s functional manifestation the way
that it’ll play out is going to depend on a lot of variables for example if you
get a night of very poor sleep if you have an infection in a fever if you’re
under significant stress you may find that
handle your baseline neurological symptoms much worse and that seemingly
these old symptoms come back out to revisit you in counterpoint when you’re
over your temperature when you got a great night’s sleep when the stressor
has been minimized you may feel like you’re on top of the world and in
talking to thousands upon thousands of families impacted by MS I’ll share with
you that what you’re experiencing is very normal it’s also super frustrating
because here you try to share with someone an invisible symptom and now
there’s another layer on top of it that invisible symptom fluctuates in its
intensity but you’re not making it up that’s quite real Jack Britten asks hi
dr. B from Nottingham UK well hello love your channel thank you question I get
headaches at least five days a week could this be due to my MS yuck headache
stink and the reality is that people impacted by MS are more likely to
experience migraine headaches than the general population so it could be
related to your MS or it could be unrelated and nature’s a little too
generous either way I hate that for you and I would most certainly seek out
medical attention to try to decrease the frequency of your headaches I bet that
through some careful attention and work we can get five days down to less than
five days a week I have a couple videos on headaches so I’ll link one up above
that you might want to check out definitely food for thought and
something to discuss with your provider best of luck and let us know how things
go Sakura asks killer meat sign be painful and it travels up my spine
through my arms now limits sign is a very very specific phenomenon which was
described by this dead french guy named mer meat and he explained that if you
flex your neck bend your head down like that you feel an electrical discharge at
the base of your neck that travels down your back down your legs into your toes
and that’s the classic limit sign so very technically no that wouldn’t
exactly be limit sign however I think it’s really teaching us the same thing
because when you bend your neck and have zip down your body it’s because you have
a lesion in your spinal cord that’s being stretched or pulled on I actually
have a video and learn meet sign so I’ll throw a link up above in case you want
to check that video out but what you’re describing is along the same lines it’s
very likely another F apt ik electric quick discharge being triggered by the
spinal cord being stretched and the fact that it’s not in the right direction or
the right limbs to me doesn’t really matter as much because it’s teaching us
a sign that there may be some neuropathic pain and I would submit also
that if it is in a fact to discharge from the spinal cord it’s probably going
to respond to the same medicines that classical er meets responds to so
excellent question Laura Kay asks our neurostimulator
ever implanted for ms nerve pain and Laura the answer is yes I jokingly call
this medicine by Edison and there are some types of neuropathic pain coming
from the spinal cord which can beautifully respond to a spinal cord
stimulator if you have medically refractory pain it is worth talking to
your neurologist about whether or not medicine by Edison might be an option
for you they make MRI compatible neuro stimulator Xand I most certainly would
only want to explore MRI compatible stimulators because if you have MS we’re
probably going to need to get MRIs down in the future Amanda Anderson asks
question are seizures a part of MS I’ve been having little myoclonic seizures
like crazy and I can’t seem to get them to stop well Amanda
I’m really sorry that’s happening and to answer your question yes people impacted
by MS are six times more likely to experience seizures compared to the
general population when you keep in mind that MS can cause cortical lesions and
you keep in mind that seizures are caused by irritable electrical activity
on the cortex it actually makes a lot of sense fortunately in my experience many
of the seizures that people impacted by MS suffer from are easily treatable
using anti-seizure medicines so I would most certainly take this concern to your
neurologist and if the MS specialist needs a helping hand hopefully they can
refer you to get a second opinion or for some consult
from an epilepsy specialist best of luck if you’d like to hear more questions and
answers like this one check out this playlist right there YouTube analytics
thinks that you would dig that video right there so check that one out and if
you haven’t yet subscribed to my channel please consider doing so just click the
circle with my face on it go ahead click my face my name is Aaron boster and
thank you for learning about ms with me until my next video or livestream or the
next time I see you in clinic take care

30 thoughts on “Answering Viewer Questions: Multiple Sclerosis Symptoms”

  1. Good morning Dr. Boster! I was wondering what happen's if you get the flu and your are on a dmt since some of them lower your immune system. I also was wondering if it is ok to take high amounts of vitamin c and to take zinc to prevent getting sick?? I have read taking extra c and zinc for a MS patient may make ms worse. Is that true? Thank you.

    I’ve been dx 2+ years ago due to 2nd ON and been on Aubagio that time. I have switched to Ocrevus a month ago and just had another ON 🤦‍♀️ treated by high dose prednisone PO. QUESTIONS: What medication is really better to prevent ON? Can I do anything to prevent future ON? My rt eye sight is still on and off like through a cloud, how can I reverse it back to normal?
    THANK YOU!!!

  3. Currently I take Avonex med. I have its side effects including general pain in my body and some flu-like symptoms. The big dilemma I faced these days. When I care about the food – quitting out of sugar specifically and junk food – the side effects disappear amazingly.Does it really matter or those feelings just kind of placebo effect? .Also, I want to read more about Avonex and how it works? Do you suggest any book that disscuss in details the immune system and the effect of immunomudlatory drugs?. Also Thanks for your very informative videos :))

  4. Informative, as usual. Thank you for putting out these videos. If I lived in OH, I would definitely want you as my neurologist.

  5. I get the electrical thing down my body to my toes often. Throws me off balance if I look down while walking or even standing. It's very annoying.

  6. what do people who is underweight gotta do to eat healthy while trying to gain weight at the same time? is whole grain safe to consume for people with ms?

  7. Good morning! I’m from Wisconsin, but am traveling in Costa Rica and caught your video first thing this morning. I love when you create videos answering questions. Thanks!

  8. For all watching here, I would like to point out that Tecfidera has worked perfectly for me. No stomach pain, no flushing and actually I am doing great in Physical Fitness Training. I am doing exceptional time on my 5k run last Friday I clocked my self and did 28:37 . Than k you Dr. Boster . Stay active my dear friends!!!!

  9. QUESTION (from Central NJ):
    How do medications differ for treating RRMS compared with PP/SP? Do they target different parts of disease progression/prevention? Can a Progressive patient take RR meds (why or why not)?

    👏👏👏 Thank you, Doctor Boster, for your channel and answering questions/discussing topics that I never even thought to bring up during sessions with my own neurologist 💖💟💖

  10. Thanks Doc. You have given me so much good info to continue this journey. Later this week I will meet my fate with the neuroimmunologist and neuro ophthalmologist. Because of the education you have given us I won't be as afraid. I have a better idea of what to expect. Blessings to you and you crew…with a chest scruff for River.

  11. Dr. Boster, thank you for addressing changes in symptoms, particularly that they come and go. Though I rarely can point to any obvious cause, such as temperature change, stress, etc., my symptoms change from hour to hour and day to day. It makes planning for activities difficult, and it makes it hard for family and friends (and myself!) to understand why I can do something one day, but not the next.

  12. I have ms. Looking up or even looking up at a kitchen shelf cause great dizziness. Any help other than “don’t look up?”

  13. Love these sessions and learn as you answer other people's questions that I just hadn't thought to ask 😉 or a symptom I don't have, yet, and have ideas of what to do if they surface.

    For a future segment it seems that one discussing "Path to a Cure" as the hope and discussion keeps surfacing on ShiftMS and some real promising articles in many areas but the cynical belief of subscribers that the medical community wouldn't want to cure something that is so profitable for them. As an accountant I need to acknowledge that possibility.

    But- from a

  14. Hi! Very newly diagnosed. I am/was a runner and it was problems running and extreme fatigue that sent me to a neurologist. Only less than a year ago I was running marathons and even an ultra marathon. I am trying to stay active but my legs fatigue so fast and feel like lead. I now manage about 5 miles of alternating running and walking a few times a week. The loss of my passion has been rough. I've read stories of people with MS continuing to run. Is it possible that after starting treatment (don't know what that will be yet) I could see improvement enough to run? I had some big bucket list races planned and it's tough to watch them fade away. Thanks for all you do!

  15. I have an extremely slow colon, always constipated. Is there any hope for reasonable regularity? I am on Keto but have to emphasize that I have had this problem as MS progressed. I just ordered psyllium husk powder. Opinion?

  16. Thank you Dr. B for your neverending commitment to your online village 🙂 I hope your new clinic is progressing and I know how excited your patients must be 🙂

  17. I learn something new every day! I was unaware that PwMS were 6x more likely to develop seizures! 6x? Wow! That’s kind of scary! So far, I have not experienced this, but for those that do I sure hope they are on a good refining to control them.
    I know you touched on the neurostimulators to control pain, but what about surgical interventions to remove lesions, or even to control tremors caused by MS lesions?

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