Welcome to Shades of Migraine, a podcast series created by the Association of Migraine Disorders. Migraine isn’t black
and white, it’s blurry and shadowy but there are many forces at work trying to change how we think about and deal with this disease. We hope you’ll enjoy
listening to a wide variety of voices including the perspectives of both
people living with migraine and those that are trying to help. Each will share
the unique shade of migraine. Today we hear from Katie Golden, a self-titled professional patient as well as migraine and pain blogger, writer, patient advocate, speaker and ambassador. Katie talks about the evolution of her migraine disease from the first episodic attack as a child through the diagnosis of chronic
migraine in adulthood . my name is Katie Golden and I have chronic migraine disease. When I was five years old I had my first attack. I was on my way to my
friend Sarah’s birthday party and all of the sudden I couldn’t see. I had an aura
which I now know is and was an aura. And the pain the head pain that came with itand the nausea and the sensitivity of light and sound, and I remember vividly,
even at that young age, crying uncontrollably for hours , and this happened another time and so my parents, who do not neither one of them had
experienced a migraine attack, they took me to the doctor and I was diagnosed
with migraine disease. And it was pretty easy to be diagnosed because I had an aura. So for me an aura is like zigzagging shapes but it’s kind of an a
crescent moon and it starts small and then it gets bigger and bigger and
bigger until it goes out of my field of vision. So growing up I had migraine
attacks. They were very, very sporadic. Sometimes I’d have one a year sometimes one a month sometimes one a week, and then as I got older it was right before my 30th birthday. I had a migraine attack
and it never stopped and that was six years ago. This hurts. This hurts my entire body. The symptoms that go along with it,
it would take me out of school for not just one day during the attack but for
two or three days because my whole body aches. It feels, I think the best description is, I feel like I got hit by a truck. And so it took some time… took a
few days to recover. So I mean, there were times that I missed a lot of school
because of it . And then when I had this migraine attack six years ago that has never stopped I thought, okay well I’m gonna figure this out. It can’t last forever. There’s no, there’s no way this can continue. So maybe, maybe this…
Okay it’s been a month now but I’m changing my diet, I’m on a new medication, I’m doing this and that, and then two months in it’s still not going away. And I still couldn’t return to work. Then I started to get concerned and then in the three month mark my doctor finally said, Katie you have chronic migraine.
What, what do you mean chronic? Like, I didn’t know that was a possibility that that even existed. The technical definition is if you have
chronic migraine you have fifteen days or more a month where you experience
migraine. For me it’s 30 days. It’s 24/7 365. To minimize my pain I do yoga. That took a long time to be able to do. And when you, when you have a chronic illness no matter what it is, it’s very hard to get up and get moving.
And you know I credit to my lovely partner, my better half, my boyfriend
Kevin. He kicked my butt and was like enough is enough, You need to be able to walk down the street without getting winded. And so I was lucky enough to be able to have a personal trainer who really helped me. It was rough. iI was really ,really rough, but having some physical strength
gaining some of that back makes me feel stronger, and it makes me feel a little bit more in control of what’s happening to me… In upcoming episodes Katie will
talk to us about Headache on the Hill, finding a cure for migraine, and the
effects of migraine on her career and personal relationships. Find out more about Katie on her website
www.goldengraine.com. Thank you for tuning in to Shades of Migraine. For more information about migraine disease please visit www.migrainedisorders.org

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